Clinical Data Repositories

Database & Reagent Registry [MSK only]

The Database & Reagent Registry is an online system for registering and searching for databases and reagent collections owned by investigators, services, or departments. In other words, it is an institutional “yellow pages” that may be used to locate databases as well as biological and chemical reagents that have been collected throughout MSKCC. It is hoped that this registry will ultimately facilitate and stimulate interdisciplinary collaboration among MSKCC’s basic and clinical researchers.

Within the registry, databases and reagent collections may be described as clinical database, cell line collection, small molecule library, slide presentation, supplementary website or tissue/sample bank.

Pathlite [MSK only]

Pathlite is a de-identified query portal for diagnostic records for the paraffin-embedded, formalin-fixed tissue archive of the Department of Pathology. It is accessible by MSK personnel and is intended to assist investigators in the development of clinical and basic research studies by providing information about the extent of this tissue archive.

Study Tracker [MSK only]

In order to support multi-institutional studies the Bioinformatics Core has developed a multi-institution, human subject accrual system called Study Tracker. The Study Tracker allows the PI of the Administrative Core to track subject accruals to individual study arms, and is designed to address the following use cases:

  • How many patients have been accrued to the individual arms, and which arms need additional accruals?
  • How many patients have responded to therapy?
  • How many patients have had adverse events?
  • Which patients need additional data?

The Study Tracker has a web portal for subject data entry, query, editing and review, and generates and emails monthly summary reports to the PI as MS Excel spreadsheets. In addition, it is fitted with date-triggered email alerts that go out to all data entry personnel, when patient information is not up-to-date.

Google Summer of Code

As part of our participation in the Network Resource for Network Biology, we will be sponsoring students for the Google Summer of Code during the Summer of 2012.